Saturday, 16 July 2016
Wednesday, 13 July 2016
Friday, 16 October 2015
Hi I, Hi C! *waves* I'm so glad that you guys have found my blog and are continuing to stalk me up online, and all because you know that you've been very silly people indeed and are pissed that you've been both caught out, and called out on your disgusting views.
For anyone who isn't clear what's going on here regarding the comments on my previous blog then here are the facts, pure and simple which can all be backed up by screenshots.
So, a few weeks ago on Facebook I saw that I had posted a mind numbingly dumb and incredibly ignorant status mocking the plight of Syrian refugees not long after the horrific stories and images of dead children washing up on beaches and people attempting to flee to Europe for their lives were all over the world's media (and rightly so). I's comments were racially tinged and he often comments similar stuff on his Facebook. Now after seeing plenty of mindless stuff like this over the years I decided that my eyes could no longer be exposed to his stupidity so I deleted him. However, this wasn't before screencapping the aforementioned status and posting it on my main page.
Now, in his status he said something along the lines of ''why are people trying to come over here if they can afford HD brows doing'' and hinted that Syrian refugees fleeing from horrific circumstances were basically bullshitters and just trying to come to the UK and other countries 'for da benefits and jobs' suggesting that 'we' should 'look after our own first' and 'more people should die'. It's the same tired, thick and ignorant rhetoric that those decent minded members of society witness every single day and quite frankly makes my teeth itch.
Anyways, so yeah I posted his delightful status on my Facebook and captioned it asking anyone who held the same beliefs as this c*nt should delete myself from their Facebook. I also added that his wife (C) should sort her own eyebrows out before I mocked refugees in an attempt to validate his ignorance and hideous views. I added a photo of them both to the thread and people on my friends list looked at the evidence before them and made their own minds up that both of them were really very silly people indeed.
Laughter ensued and jokes were made, that was that. Nothing more, nothing less.
A few weeks later I had gotten word of my actions and then decided to take offense, posting his own status asking for people to let him know where I live or work so he could 'sort me out face to face' and calling me a fanny which was met with amusement and much laughter as I mean, really? You're going to go track someone down because they took the piss out of you and your wife's eyebrows but it's completely ok for you to mock and laugh at innocent people running for their lives?
Double standards much?
I then decided to start inboxing me in a threatening manner, telling me he knows where I live, he's going to come and 'sort me out' and 'make me apologise' and so on, and so on. He even attempted to track my location using Google and had his Navy friends try to add me. As if he thinks I'm dumb enough to do so. Please. When he eventually realised that I don't scare easily, or maybe he realised that being in HM's Navy that he really should conduct himself in a more appropriate manner as it is obvious that he needs to brush up on their equality and diversity guidelines he blocked me on Facebook and that I thought was that, until he started leaving comments on my blog like the one above and C decided to join him.
Also, I think that wishing that someone does not get a transplant is pretty much wishing death on them so by publicly posting that you've really just proved how hideous you are.
Here's hoping that you're not on the organ donor register I as it would be pretty ironic if I were to receive your lungs in the event of your death. Hmm. I'm sure that you'll both be reading this at some point guys so let me reiterate what I told I via inbox. I could not care less what threats you make, what supposed actions you think you can take. I have nothing to hide. I have evidence to back up everything that has been said. If you continue to spout your bile then I WILL email all of the screenshots to I's Commanding Officer in Yeovil.
Here are the Royal Navy's equality and diversity guidelines guys, I strongly suggest that you read them and think very carefully about what you post online in future. Ok? Oh, and I'm fully aware of the laws surrounding social media and nothing that I have done is illegal ok. Ta.
Thanks for the entertainment. Yours sincerely, Andrew. xoxo
HM Navy's Ethics and Diversity Guidelines: http://www.royalnavy.mod.uk/equality-and-diversity
Thursday, 10 September 2015
Wednesday, 24 June 2015
Anyways, here's a short video which focuses on the treatment regime of people with Cystic Fibrosis, have a watch.
Wednesday, 25 June 2014
People with the double DF508 gene mutation make up about 50% of the CF community.
What does this mean? Well, it's a bona fide scientific breakthrough as, since now, all medicines and treatments have been tailored towards treating the underlying symptoms of Cystic Fibrosis - this would be the first drug ever to attack the cause directly. The real world implications of this could be staggering indeed, young children born with CF could now take this drug and live a whole and normal life, requiring much less treatments and time in hospital and experiencing much less serious long term damage to their lungs, perhaps for some, none at all.
And yet, I'm not jumping around with happiness... I don't really feel anything about it. Should I?
Undoubtedly this is a major scientific breakthrough the likes of which have never been seen before and I'm glad that many people won't have to go through many of the horrible things that I did growing up. However, part of me feels angry too. There's a lot of people throwing the words 'miracle cure' around right now, people are elated with the news of the breakthrough, which is completely understandable. There's lots of hope and there's lots of optimism that this drug will lead to other drugs and new treatments and that this whole process could potentially be the first baby step towards an eventual cure for Cystic Fibrosis.
I guess, being the super dooper realist that I am I'm just deeply entrenched in cold, hard reality. If the FDA approves the drug in the US it will probably take between 8-12 months to do, then subsequent approval has to be sought in Europe too which will most likely take another year. Then there's the question of whether the already under strain budgets of the NHS can afford to purchase it. There's all kinds of cost quotes flying round right now, some say in the US it will cost anywhere between $160-250,000 dollars per course of treatment for each patient so it is likely to cost a shitload in the UK.
Another issue is one of what about the people who don't have the double DF508 gene mutation? They continue to wait and hope for a similar breakthrough as that's the problem with genetic diseases like CF - any breakthrough in treatments invariably denies another group within the community as it is just that complex to gain any ground on. Irritating bastard that it is.
My anger is for those of us who the drug offers very little for, the older people with CF who have struggled and fought their way into adulthood. Those of us close, or already on the transplant list, and yes, those of us who have already lost the battle.
Time is always against you when you have Cystic Fibrosis, and discoveries like this are too late for many. I can't help being angry about that. I'm not 100% sure if I qualify for this new treatment *should* it become available, my CF unit are busy attempting to categorise people's secondary mutations if they have them so I'm sure they will tell me once they have assessed the information. I'm more concerned that If I am viable then by the time the drug is approved and if the NHS can fund it what state will my health be in by then? 2-3 years is a lifetime away right now, despite me doing really well and busting my balls to stay that way with another transplant assessment coming up.
Don't get me wrong, I'm happy and recognize the massive importance of yesterday's breakthrough. I just wanted to share some thoughts about the harsh reality of how it will affect the CF community as a whole.
*throws gang sign with hands and struts away from laptop*
Tuesday, 24 June 2014
So, as some of you Twitter and Facebook followers know, me and H went to the Kings of Leon concert at Sheffield Arena on the 18th June and things didn't go quite to plan. In a nutshell, we arrived at the arena to find that our pre-booked disabled seats had been given to a non-disabled couple who were claiming a 'bad back' after booking sto. After much explaining of my condition and state of health we were then forced to move allll the way around to the other side of the arena despite several further explanations that this would be potentially dangerous for me as my breathing wasn't great.
Still, we were forced to move.
I wrote this letter to the arena manager to complain:
I emailed a copy of this to the customer services, and received this replay some 48 hours later: